Friday, January 30, 2009

EEG Results

2/4/09 UPDATE
Hey there - we got some unnoficial results from the test. It is not bad news but I wouldn't put in great news category either.
We're meeting with Dr. Kornblum (neurologist) on Monday so we'll have more info then but here is a quick summary.
It looks looks about the same as last time, maybe better. There were no seizures, but there are still significant abnormalities that are on both sides.
We don't fully understand what this all means and during our appointment I'm sure we'll talk more about next steps.

The good news is, she is doing really well developmentally. By this I mean, that even though she is behind, there is definite progress week to week. And she has the cutest smile :)
Hugs,
Erin

PREVIOUS MESSAGE
She did really well during the EEG and based on what the technician said she may have a normal reading. We are still a little concerned because she has a slight tremor in her hands and feet. So far no one knows why.

Her blood pressure is still high (120/70) which is 90% for babies. So it has come down significantly but still needs to be lower. The Amlodipine does not seem to do much for her but we are still giving it to her twice a day.

On Feb 9th we have a Nerology appt and on the 10th we have a Cardiology appt. So we'll know a lot more after those visits.

For her 6 month check up (yesterday) she is doing great and only a little bit behind developmentally. She is not sitting up by herself yet or doing much rolling. Her OT says she is progressing and will hit those milestones soon.

Here's a photo of Conrad and Andrea. Even though attaching the leads is a bit traumatic, Marleigh has decided not to hold it against them.

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