We hope that everyone had a lovely New Years Eve. We spend the evening with our very good freinds, just a few blocks from our house. We had a terrific dinner and played silly board games and even had a little champagne!
On January 13th we gave marleigh her last shot of ACTH. In the movie businesss when you film the last shot of themovie the Martini Shot. We celebrated just long enough to not jinx it. She's been seizure free and we are hoping it stays that way.
Now the plan is to keep an eye on her and potentially start to decrease the other anti-seizure medication. We'll be doing another EEG in a few weeks to see if the ACTH helped to normalize her brain waves. In the meantime we are dealing with her high blood pressure. She is now on Amlodipine 2x a day as of her Wednesday appointment it is finally down to an acceptable level. We have a follow-up appointment with the cardiologist in February. If all goes well, then her heart will start to loose the excess thickness and return to normal.
She is meeting twice a week with infant development specialists. Here is a photo of her with Lindsey, her OT. We are excited because she is doing much better supporting her head and reaching for toys. Just this week she started banging toys on her tray and even rolled from her tummy to her back!! We are soo excited about her progress! And so is she ;)
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