Happy Heart News

Marleigh had her follow up with Dr. Ferry (Cardiologist) last Tuesday and we got great news! Her heart is in perfect condition. All the thickening that happened due to the high blood pressure has reversed. So we are thrilled!!
Here is a photo of her EKG.



Here she is with Dr. Jenna Roberts. We are in her office at least once a week and the whole staff at Pacific Ocean Pediatrics has been amazing. We are very lucky to have such talented people looking after her.


We also met with Dr. Kornblum (Neurologist) last week. We talked about her EEG results and he said that after seeing her in person he was suprised her EEG reading wasn't better. The great news is she is not having any seizures. The not so great news is that her EEG is still abnormal so we need to stay on the Zonegran (anti-seizure meds) and keep an eye out for anything that might be a seizure. If everything is still going well in 2-3 months then we'll be admitted to the hospital for a 48 hour video-telemetry EEG. This will give them more data so we can make sure there isn't something like a non-symtematic seizure going on and give her brain a little more time to develop and possibly normalize a little more.

She is continuing to develop motor skills and we are confident she will be doing some intentional rolling soon. She is very close to sitting up on her own and is beginning to play with toys by moving it from right hand to left - which is a milestone. And she is really enjoying her solid food experience, but only the veggies! I keep trying to get her interested in apples and bananas but she's just not that into it. She is great at playing with the spoon and making a great big mess! I love it when she does completely normal things - it is adorable.