Zonegran Working?

So we checked into th hospital on Monday (9/15). The plan was to start the ACTH therapy but it turns out her seizures have stopped. We think it is because of the zonegran, becuase we increased the dose last Tuesday to 100mg per day and over the last week we have seen some of the seizures become less severe and shorter, mixed with some of the normal more intense seizures. But the last serious one she had was on Sunday at 11:30am (there were other smaller ones till 1am on Monday morning). Which is really great news!


Our doctor decided to have her hooked up to the EEG with video monitoring again to really make sure that there aren't seizures that are not visible or that happen when we are asleep, etc... She was a real trooper this time and didn't make much of a fuss while Andrea attached the electrodes (it is a long and smelly process - the glue has Ether in it). And when the glue dries it feels tight on her head. So we didn't get much sleep last night and she's more than a little crabby today.

The good news is her EEG showed no seizures. Sometimes there are seizures happening that don't show up physically, so it is good to know that she is not having that either. They are keeping us another day just to make sure. If she does have a seizure we'll be here longer to start the ACTH therapy. If not, then they'll send us home in the morning