Great News!!

WOW! We are having a great week!! We heard from Dr. Kornblum and Marleigh's EEG came back looking better than I expected. The displaysia still showed up (and it always will) but the rest of her brain has normalized. At this time there are no indications of seizure activity - Yay!

What does this mean? In a nutshell one of the following 3 things are equally likely to happen:
1. Marleigh continues to develop, never has another seizure and may only be slightly delayed (we are unsure if she will suffer a lasting dissability or if any slowness will be nominal).

2. Marleigh does develop some form of epilepsy but it is controllable by medicine.

3. Marleigh developes epilepsy but it is not controllable by medicine and will require surgery.

Obviously we are really hoping that it will be #1!!

She has had a great week, like I said, and has started getting on her hands and knees, pulling herself up on the coffee table to her knees, and started to self feed. And she is getting really good at peek-a-boo! I'll try to post a video soon.

Well, am pretty beat. Dylan was sick today so we are hoping that no one else gets it since it is a nice long weekend. He might have to miss soccer tomorrow. And we think that Mika has a bladder infection so we will be bringing her to the vet. And we are hunting for a new rental - hopefully a nice house with a yard that is surprisingly affordable for the terrific area it is located in. We have applied for a home that mostly meets our needs, but this will be the 3rd one we have tried for so we're not getting our hopes up until the lease is signed. That will mean one more year here for better or worse.

Hugs,
Erin

EEG May 09

Hi - I'll have to post photos later but I wanted to let you know that we had a 6 hour EEG today to see how Marleigh is doing.
She handled it pretty well and only cried when he pulled the sticky tape out of her hair (hey, that would probably make me cry too!) Not sure when I'll have the results but the EEG tech said he could still see some asymmetry in the reading. That probably means that she has stayed about the same. But who knows, maybe we'll reduce the dose of her anti-seizure meds.

Developmentally she is doing great, even starting to catch up in a few areas. She is still not crawling, but it may not be that far off!

Dylan LOVES his little sister!

More soon!
Hugs,
Erin